Tuesday, March 13, 2018
This evening she had a seizure just before 9pm. Thankfully just short 1 minute ones again this week.
Primary assembly today. It didn't go as well as last time, but it's all a learning process. Some good things came from it.
Asher received her "Welcome to Whero" certificate today.
We had quite a few mushrooms in the garden again today, but different to last weeks ones. In shape colour and size.
This was the huge one that we brought in to try and find out if it was edible. We got different feedback (some saying it's a safe field mushroom and others saying it looked too pink underneath). So in the end we didn't risk it.
The comment I most appreciated was: "Doesn't leave 'mushroom' for anything else on your plate." :-)
No photos from the weekend. Anastasia had been feeding more at night for a few nights (1:30am, 3:30am, 5:30am), so I was exhausted. I ended up staying home on Sunday morning while the rest went to church.
Anastasia and I had such a long sleep through the morning. We were asleep by around 10 and only woke just before 1 when they got home. It was just what I needed to feel more alive again. I'm guessing she is going through a "growth spurt" and hopefully it will settle soon.
Monday 12th: Hezekiah has been enjoying Anastasia a lot over the last couple of weeks. So it was nice to catch this photo today of him chatting to her. She is so lovely and responsive - so it's very rewarding chatting to her. :-)
At 1:15 Asher had her first seizure at school. It was only about 40 seconds but the strange thing was that she was conscious. She didn't fall over but grabbed Rachiel and was very stressed by it, breathing very quickly and clearly scared, so I'm glad it stopped so quickly.
Tuesday 13th: A busy day in town for me today. First was Ruth's orthodontist check up. She has lost 3 baby teeth since her last check up. She still has a lot on the top to come out.
Her mouth is still pretty crowded. They plan to see her again in 9 months. The good thing about this is that we don't pay for these follow up appointments. We only paid for the original one - and all the follow ups are free.
They will make their money when it's eventually time to do some work in getting them straight (she has one top tooth totally in the wrong place, biting behind the bottom ones).
And then we headed to the hospital for Asher's follow up eye appointment. Thankfully today was a quick appointment and they didn't need to put drops in (which you have to wait for 30 minute to dilate the pupils).
We were 40 minutes early and so I anticipated a very long wait. I was really pleased when I was able to get Asher to play with a big 4-in-a-row game they had there. She does love posting, so it did appeal to her (and they have a similar one in her classroom). This was a huge blessing as previously Asher didn't even want to look at things in the room but stuck to her familiar toys and her iPad, to keep her from getting stressed about the unfamiliar room.
The next blessing was that we didn't wait long at all (I was just about to take a photo of her playing and we got called). So we were all done before her appointment was even due.
The check up went really well too. The lady was really friendly and good with Asher. She asked if she was verbal and I said no. So she checked without asking Asher to answer any questions.
Rachel made mac-n-cheese for dinner which is always much enjoyed. Ruth decided to let Asher help dish up (her 2nd helping). It was lovely having Ruth with for the day and it's the one negative about her going to school. I love how she interacts with her younger siblings. She is such a great big sister.
Anastasia had a great time this evening with Dad playing "This is the way the ladies ride". She was laughing so much that I got my phone to try and get a video. As soon as she saw it she got very serious though. She was eventually smiling again at me, but no more laughing. It was so much fun to watch though.
Tuesday, March 6, 2018
Hezekiah didn't mind the cold at all. Even during the Wai swim lessons, when it was really cold, he was the one that stayed in the pool the longest. It sounds like one day he ended up the only one left in his group having his lesson. The others were all out and trying to warm up.
He is doing so well with his confidence in the water. He was excited about showing me how he can jump into the deep end.
He also showed me how he goes backwards. He has a nice strong kick and keeps showing me how he keeps his feet in the water. :-)
And in no time she was off. She decided she wanted to swim the length of the pool. It was great that she stayed close to the side. Once Ruth was out of her depth at least we were right there and able to grab her if she had a seizure.
Nice to get a video of Anastasia laughing. It's always tricky as she still tends to just stop everything when the phone comes out to take a photo or video.
Playing peek-a-boo with Asher. Asher does so love this, so it was nice to get her playing it with Anastasia too.
Rachel is planning an ice skating trip for her birthday and wants to practice on rollerblades a bit before she goes. Unfortunately the ones we were able to lend were just too small. They fit Ruth though, so she has been enjoying using them a bit.
Asher only had a half day today and spent a couple of hours after lunch at home with Lynda so that I could attend her IEP at school (Individual Education Plan). We had a great meeting and it was good to get so many people from her team together to discuss things. I am so very thankful for all the lovely ladies that are involved in helping Asher with her education. We feel so very blessed.
Rachel headed to town early this morning for an Event Management Course (part of her high school NCEA levels). It's run from Monday to Wednesday, so she stayed with people in town to save of travel (money and time). She had a great time and did really well.
This afternoon Ruth was playing "hide and go seek" with Asher. It was sweet to see Asher go to the previous spot each time. At first she didn't even notice Ruth in there. It was almost as if seeing her leg wasn't enough.
Asher had a seizure at 8:30 this evening. Brendon spotted it on the monitor just as it started - so it was good we could be with her through it. She has had a 12 day break and so it felt so strange to deal with a seizure again and the restlessness afterwards. It took a while to get her settled but she then had a good night's sleep.
We headed to bible study again this evening and Asher managed to fall asleep in the room with us. So sweet. And I'm so glad we could attend.
Friday, March 2, 2018
She is also eating so amazingly well at school. The new medication can cause children to loose their appetite, so this is a real blessing to see. As Rachel said - with Asher's history of reactions to medication it's not a surprise if it's actually having the opposite affect and giving her an appetite. Let's hope the appetite stays. She actually lost weight after stopping the Ketogenic diet (it's normally the other way around).
NOTE: It only lasted for about 3 days and she has gone back to not really eating much.
Tuesday 27th: Hezekiah made a train track this evening. I love how creative he is.
Wednesday 28th: Asher had a day off school today. She was a bit confused about not going with all the others getting ready. It was a short day though as school closed at 12:30 and then they had an Open Day the whole afternoon.
I headed back to the school with Hannah, Hezekiah and Anastasia at 2:30 (Ruth had stayed at school to help with things). I got to spend a bit of time chatting to Hezekiah's teacher and then spent time in Asher's class. It was good to meet some of the other parents and be able to be available to answer any questions about Asher.
Then Ruth, Anastasia and I just hung out, chatting a bit to Ruth's teacher and some of the other mothers there. They had a sausage sizzle going on through the afternoon and Hezekiah and Hannah had a great time playing.
Brendon then joined us for the official time in Ruth's class and then Hananh's. It was a lovely afternoon and so good to catch up with so many people.
This evening he was "surfing" on it and Asher went over to join him.
Some more of Ruth's creations.
They left school at around lunch time and were only back after 6pm. What a great opportunity for them.
That is also not a watch on his arm but a Velcro strip that he found that became some fancy gadget. :-)
In general Hezekiah is so very creative with his games. I love that he can often just play on his own with his wonderful imagination.
Sunday, February 25, 2018
Asher woke in the night sounding like she might vomit. It happened again this morning and I was following her around with a bucket for a little while. I started wondering if it was indeed a stomach bug that Hezekiah had on the weekend. She didn't get sick though and had such a low energy day that I went to check side effects of her new drug.
I asked Kerry if she would take some photos at the swimming for me and she sent me so many lovely ones.
Hezekiah has just taken to swimming and is doing so well. He is my first child to be doing so well at just 6. Such a contrast to growing up in South Africa with a swimming pool in our garden. I'm sure all 5 of us kids were swimming by the time we were 3 or 4. We just had so many months of swimming and were in the pool every day.
Kerry took so many photos that I felt like I was there watching them. Thank you so much Kerry. It was a real blessing.
Hannah getting ready for her freestyle race.
Hannah has improved with her swimming so much over the last month. It's been wonderful to watch.
This afternoon Brendon was cutting the grass and Asher always loves watching him. She was so tired though, so I encouraged her to sit down and she rested her head on the teddy while watching. She didn't sleep today, but just rested quite a bit. It's encouraging to see improvement every day. Her body is getting used to the new meds and I'm sure it won't be long before she is back to her normal energy levels.
Ruth has a week long Wellington trip coming up later in the year and the children have been encouraged to do fundraising for it. So Ruth got started in making some jewellery to sell.
The plan now is to hopefully get a few more of the children in the school making jewellery that they can sell and fundraise together.
These are Ruth's first two creations.
It's going to be fun seeing all the creations that come out of this box over the next few months.
She still remembers the wonderfully successful sweet peas I had over a decade ago. It will be lovely if we can get some success here too.